PATIENTS AND THE PUBLIC

• Include patient and public partners in how we govern, manage and deliver our work.

• Set up a clear process for researchers to bring patient and public partners onto their project teams.

• Build strong relationships with diverse communities to ensure PPIE is high quality and equitable.

• Train patient and public partners in research and train researchers in PPIE to build knowledge, confidence and skills.

• Report on our PPIE activities and seek opportunities to improve involvement and engagement.

• Evaluate the value PPIE brings to our research and share what we learn with the International Alliance for Cancer Early Detection (ACED) and the wider research community.

• Build a PPIE community of practice in our local research settings. This supports information sharing, upskilling and wider collaboration.

• Create Alliance-wide payment principles for PPIE, so patient and public partners are fairly compensated for their time and expertise.

Academic lead for PPIE

Steph is an Associate Professor of Psychology at the University of Cambridge and an Honorary Health Psychologist at Cambridge University Hospitals. Her research focuses on health and wellbeing to address inequalities in healthcare and disease. She leads PPIE across several Cancer Research UK funded programmes.

PPIE Coordinator

Jacob is based at the University of Cambridge. Throughout his PhD and career to date, he has placed public engagement with research at the heart of all his work, with a particular focus on enabling people from underrepresented groups to help shape a variety of research projects.

Inherited cancers research theme Co-champion

Yulia is a UK-based patient advocate supporting individuals and families affected by hereditary cancer. She leads international education initiatives on the PALB2 gene, contributes to research programmes including CanRisk and EMBRACE at the University of Cambridge, and previously served as Vice-Chair of a local cancer support charity.

Inherited cancers research theme Co-champion

Robin is based in the US and is the Executive Director of AliveandKick'n. She is a Lynch syndrome family caregiver and advocate with more than 13 years in hereditary cancer advocacy. Robin brings together patient communities, clinicians, and researchers to advance early detection, equitable access to care, and meaningful participation in research for people living with inherited cancer risk.

Inequalities and interception research themes Champion

Jane is UK-based and retired from a career in legal education and training. Informed by her caring role for family members affected by cancer, she contributes to cancer research with organisations including Cambridge University Hospitals, PELiCAM, MRC Biostatistics Unit and her local GP surgery. Her interests include research ethics, trial design, public health and responsible use of technology and AI in healthcare.